Receiving a diagnosis of multiple sclerosis can be overwhelming and scary. For some patients the diagnosis may feel like a relief, to finally have an explanation for multiple symptoms. Finding a neurologist who specializes in MS is important, she will provide the most thorough exam and tests, such as an MRI, to arrive at a diagnosis.
How to Cope with a Diagnosis of Multiple Sclerosis
The reality of having a chronic illness takes time to sink in for the patient and her family. Shock, denial, anger and tears can reasonably be expected. The question of how to move forward and adjust to a diagnosis of multiple sclerosis is challenging. One of the best places to seek information is from the National MS Society. They can provide support in a number of ways, with free information, support groups and other services. Check their website to find a chapter close to you.
Learning the Facts about MS
Power is Knowledge is a NMSS publication designed to provide information on multiple sclerosis for the newly diagnosed patient and his or her family. There is no charge for the series of booklets which are mailed over a period of weeks. For the individual with MS and his or her family, receiving the booklets over an extended time span helps to lessen the immediate emotional impact. Each booklet addresses a specific topic; defining MS, discussing how to disclose the diagnosis, tips for caregivers, and treatment options are a few of the subjects covered.
Initial Adjustment Period with Multiple Sclerosis
For the newly diagnosed patient and his/her family there are so many questions. "What does treatment look like?" "Am I going to be in a wheelchair?" "Will it be painful?" All of these questions could arise and cause concern for families coping with a chronic illness like MS.
Taking it one day at a time is an old adage which can be applied in the early stages of multiple sclerosis. Each day is an opportunity to gain more knowledge; focusing on getting through the day and celebrating the positives.
It’s important to understand the grieving process and the stages of acceptance. Allowing time to work through the initial period is important and will vary from individual to individual.
Important Considerations for Individuals with Multiple Sclerosis
One of the biggest questions people struggle with is how to share the diagnosis. Are there people who need to know? Are there easy ways to break the news?
How will the illness impact employment? How much to share and how to make the necessary modifications for continued employment should be considered. Information about ADA requirements will help the patient understand her rights in regards to the workplace.
Understanding treatment options is an important consideration. Today there are more options available for MS patients based on the type of the disease (relapsing-remitting or primary progressive). Symptoms vary widely among patients and require differing treatments, being knowledgeable can make the decision process easier. A neurologist who specializes in multiple sclerosis will have up-to-date information on drug options and current MS research.
Following a diagnosis, the patient will have many unanswered questions about his or her future . The emotional impact of living with multiple sclerosis impacts all members of a family. With the help of a neurologist and the many organizations specializing in MS, the issues can be handled sensitively and effectively.
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